dc.contributor.author | Ažukaitis, Karolis | |
dc.contributor.author | Puronaitė, Roma | |
dc.contributor.author | Vaitkevičienė, Goda Elizabeta | |
dc.contributor.author | Trinkūnas, Justas | |
dc.contributor.author | Jankauskienė, Augustina | |
dc.contributor.author | Jankauskienė, Danguolė | |
dc.date.accessioned | 2023-09-18T20:50:25Z | |
dc.date.available | 2023-09-18T20:50:25Z | |
dc.date.issued | 2023 | |
dc.identifier.other | (crossref_id)150588799 | |
dc.identifier.uri | https://etalpykla.vilniustech.lt/handle/123456789/152808 | |
dc.description.abstract | We aimed to explore the feasibility and potential relevance of integrated electronic collection of patient-reported outcome and experience measures (PROM and PREM) in children with special healthcare needs (CSHCN) by using the example of children with kidney and hematological diseases. We performed a cross-sectional, single-center study of children <18 years of age. Children (≥10 years) and their parents received Generic PedsQL Core Scale 4.0 and custom PREM surveys to their email addresses via the REDCap platform, and the results were integrated into the hospital’s electronic health records system. A total of 192 patients (98 with kidney diseases and 94 with hematological diseases) were enrolled. The overall response rate was 51%, and the median time for completion of each proxy questionnaire was approximately three minutes. The lowest PROM scores were observed in the emotional and school functioning dimensions. More favorable experiences in the diagnosis establishment process were associated with higher scores in physical, social, school functioning, and total PROM scores. A better evaluation of the hospital’s environment was associated with higher social functioning, while better information provision correlated with higher physical functioning and total PROM scores. Our data indicates that integrated electronic collection of PROMs and PREMs in the population of CSHCN is feasible, but efforts to increase the response rate are needed. The associations between PROMs and PREMs suggest that future studies exploring targeted interventions at the healthcare service level to improve subjective patient outcomes are needed. | eng |
dc.format | PDF | |
dc.format.extent | p. [1-23] | |
dc.format.medium | tekstas / txt | |
dc.language.iso | eng | |
dc.relation.isreferencedby | Science Citation Index Expanded (Web of Science) | |
dc.relation.isreferencedby | Scopus | |
dc.relation.isreferencedby | PubMed | |
dc.relation.isreferencedby | DOAJ | |
dc.rights | Laisvai prieinamas internete | |
dc.source.uri | https://talpykla.elaba.lt/elaba-fedora/objects/elaba:173652382/datastreams/MAIN/content | |
dc.title | Integrated collection of patient-reported outcomes and experiences in children with kidney and hematological diseases: a pilot study | |
dc.type | Straipsnis Web of Science DB / Article in Web of Science DB | |
dcterms.license | Creative Commons – Attribution – 4.0 International | |
dcterms.references | 36 | |
dc.type.pubtype | S1 - Straipsnis Web of Science DB / Web of Science DB article | |
dc.contributor.institution | Vilniaus universitetas Viešoji įstaiga Vilniaus universiteto ligoninė Santaros klinikos | |
dc.contributor.institution | Viešoji įstaiga Vilniaus universiteto ligoninė Santaros klinikos | |
dc.contributor.institution | Vilniaus Gedimino technikos universitetas Viešoji įstaiga Vilniaus universiteto ligoninė Santaros klinikos | |
dc.contributor.institution | Mykolo Romerio universitetas | |
dc.contributor.faculty | Fundamentinių mokslų fakultetas / Faculty of Fundamental Sciences | |
dc.subject.researchfield | M 001 - Medicina / Medicine | |
dc.subject.researchfield | N 001 - Matematika / Mathematics | |
dc.subject.en | patient-reported outcome | |
dc.subject.en | PROM | |
dc.subject.en | patient-reported experience | |
dc.subject.en | PREM | |
dc.subject.en | kidney disease | |
dc.subject.en | hematological disease | |
dc.subject.en | children | |
dc.subject.en | parents | |
dcterms.sourcetitle | Children | |
dc.description.issue | iss. 7 | |
dc.description.volume | vol. 10 | |
dc.publisher.name | MDPI AG | |
dc.publisher.city | Basel | |
dc.identifier.doi | 150588799 | |
dc.identifier.doi | 001038193200001 | |
dc.identifier.doi | 10.3390/children10071245 | |
dc.identifier.elaba | 173652382 | |